Authors: Henny Messerli & Benno Meichtry The study was published as part of the implementation of the project "Transfer of experience and good practice in the field of care for persons with dementia and other specific needs" (PF 168). In connection with demographic development and forecasts leading to an increase in the average life expectancy, an increase in chronic diseases is expected, as well as an increase in dementia diseases. At the end of 2014, 8,237,000 inhabitants lived in Switzerland, of which 17.8% were over 65 (Federal Statistical Office, 2015). Contents

  1. Introduction 1.1 Aging policy in Switzerland 1.2 Figures and facts about dementia in Switzerland 1.3 Entering the home 1.4 Family members 1.5 Costs associated with caring for people with dementia in Switzerland 1.6 Dementia strategy

  2. Protection of personality rights 2.1 Introduction 2.2 New Rights of Representation 2.3 Logging of measures to restrict movement 2.4 The contract for the provision of social services is mandatory 2.5 Representation only 2.6 What to do in case of doubt? 2.7 Categories 2.7.1 Three categories of representation 2.7.2 Representation in marriage or registered partnership 2.8 What the legal representative can do 2.9 What does this mean for residential facilities of social services 2.10 Nursing and care: representation in health matters 2.11 What does this mean for residential facilities of social services 2.12 The binding nature of measures has its limits 2.13 Professional confidentiality and data protection 2.14 Reporting rights, reporting obligations 2.15 Right to appeal, right to submit a request

  3. Restrictive measures for persons with dementia 3.1 Explanation of the term 3.2 Forms of restrictive measures 3.3 Negative consequences of restrictive measures 3.4 Increased stress in people with dementia 3.5 Team 3.6 Alternative solutions 3.7 Procedure established by law

  4. Dementia in people with intellectual disability

  5. Concepts of care for persons with dementia 5.1 Palliative care 5.2 Principle of normality 5.3 Validation 5.4 Environmental therapy 5.5 Work with memories / Work with biographies 5.6 Kinesthetics 5.7 Basal stimulation / Snoezelen

  6. Specialized forms of housing for people with dementia 6.1 Different forms of housing 6.1.1 Individual forms of housing 6.1.2 Sheltered housing for people with dementia 6.1.3 Living in a home with a special regime 6.2 Assistive gerontotechnology

  7. Advice for family members and their support 7.1 Involvement of family members in daily care and treatment 7.2 About the feeling that nobody listens to me 7.3 Reasons for disputes 7.4 Family members as partners 7.5 Error culture: "Errors can happen!" 7.6 Expectations of family members 7.7 Prerequisites for complaint management 7.8 Complaints Management 7.9 Employee training 7.10 Summary

  8. Quality of life of people with dementia 8.1 Understanding the fragility of life in contact with a person with dementia 8.2 Human dignity 8.3 Ability to self-reflect and self-actualize in advanced dementia 8.4 Caring community – shared responsibility 8.5 Caring community - subsidiarity 8.6 Reflections on an "age-friendly" culture

  9. Palliative care for people with dementia 9.1 Applicability of palliative care 9.2 Care focused on individuals, communication and participatory decision-making 9.3 Determination of care goals and planning 9.4 Continuity of care 9.5 Determination of the prognosis and early recognition of the dying process 9.6 Prevention of aggressive and burdensome methods of care 9.7 Optimal treatment of symptoms and provision of physical and mental well-being 9.8 Psychosocial and spiritual support 9.9 Family care and involvement 9.10 Training of the care team 9.11 Social and ethical aspects

  10. Ethics commissions and ethical counseling in social service residential facilities 10.1 Introduction 10.2 Default situation 10.3 Purpose 10.4 Objectives and different levels of action 10.5 Decision making 10.6 Implementation of ethics commissions and ethical counseling in residential facilities 10.7 Composition 10.8 Forms of ethical advice 10.9 Documentation and evaluation 10.10 Results

  11. Architecture for people with dementia 11.1 People with dementia need 11.2 What has been achieved so far 11.3 Color therapy 11.4 Light

  12. Education

  13. Examples of good practice 13.1 Domicile Kompetenzzentrum Demenz Oberried 13.2 Sonnweid AG 13.3 Dandelion Pfl egezentrum für demenzkranke Menschen (Center for people with dementia) 13.4 Domicile Bethlehemacker 13.5 Schönberg Center

Published by: Association of Social Service Providers of the Czech Republic Vančurova 2904, 390 01 Tábor ID: 60445831 www.apsscr.cz First edition, Tábor 2016 Editorial processing: Mgr. Veronika Hotová & Mgr. Petra Kulveitová Translation: theBESTtranslation & Mgr. Veronika Vondráčková Graphic processing, typesetting and printing: RUDI, a. s., Komenského 1839, 390 02 Tábor Supported by the Swiss-Czech Cooperation Program Supported by a grant from Switzerland through the Swiss Contribution to the enlarged European Union The study was published as part of the implementation of the project "Transfer of experience and good practice in the field of care for persons with dementia and other specific needs" (PF 168). Project partners: APSS ČR, CURAVIVA Schweiz, Gerontological Center in Prague. ISBN: 978-80-906320-1-1